Day +407-Day +451

Our last appointment of 2016 went well.  All of Steven's counts are good...should be a better holiday than last year.  There were so many conflicting feelings this past year...joyous he was home, wondering what was ahead of us, and so many rules... and the cleaning!!!  I thought by now we would be at our new normal but not the case.  They are still weaning Steven off the immunosuppressants collateral damage from having to change blood types.   He is totally off the immunosuppressant, Sirolimus, and is still taking Tacrolimus 1-3x a week.  He received more immunizations which puts us in a really good place.  We actually got permission to go to Disneyland!....with a mask.  I think we are going to wait until Steven doesn't need to wear a mask.  It may not sound like a big deal but it's a pain now that he doesn't have to wear one regularly.  However, he still wears a mask when he is at City of Hope.  Our oncologist is happy with Steven's recovery.  Most patients in the first year get readmitted for something (infections, low counts that don't bounce back, etc..).  We have much to be thankful for but good riddance to 2016.