We will be seeing our doctor today. He had rounds at the hospital so we saw the nurse practitioner the last two weeks. The nurse practitioners are fabulous but there are still a lot of things they can't answer until conferring with the doctor. I have many questions today.....have I mentioned that Thursday is Day +100?
Steven's Saturday was not great. Luckily he feels much better today. You never really know why he feels nauseated/exhausted, it's just part of the process. We also have an appointment with the endocrinologist after being lectured on nutrition and diet last month. They have assured us the increased glucose is medication related, but the guidelines are good reminders for healthy eating. I commend COH because they really do treat the whole person, not just the disease. I will remind the endocrinologist that Thursday is Day 100, just in case he needs to know…
Labs are back and counts are all down. Steven will receive his first shot of Neupogen. He knows more about it than his doctor does since he did antibody testing on it when he was at Amgen. This drug encourages the bone marrow to produce more white blood cells. The crazy nausea is probably due to GVHD. His Tacrolimus and Serolimus (anti-rejection) levels are low so they don't want to decrease them further. We will manage his symptoms and check levels next Tuesday.
The only thing that will change is we were given our doctor's blessings to go to clinic once a week. The caveat is if Steven is uber tired at the end of the week (HGB is 8.0), we may need to return for a unit of blood. It's good to be flexible...
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