Day +167

3/22/16-Our doctor had to go to India.  His father had a stroke, so we are seeing a nurse practitioner today.  Steven has a cold.  Now in a perfect world, this isn't a big deal.  In fact, two years ago I would have said, is this the kind of cold carried on the "Y" chromosome??  We mentioned his cold and the rules became different.  He got a Zithro prescription, nasal wash with culture and throat swab.  No questions that might indicate you have to suck it up and let the virus run it's course or a lecture on how antibiotics are overused.  The good news is we will be here every week for a follow up.  Nasty cough.

This is the third week where Steven has not had to get blood.  Why didn't I mention it earlier?  I kept waiting for the other shoe to fall.  The recovery of a BMT patient is so tenuous.  When counts get better, they don't always continue to get better.  We have been leaving here as if we were skipping class.  I would look over my shoulder for someone to run after us saying, oh sorry, we got you confused with someone else and you need 6 units of blood on the no crossmatch and we called a crash cart as well.  I'm a little shell shocked....

Steven is still very very tired even though his hemoglobin is higher than it's been since we started this process.  That is one of the unfortunate consequences of a BMT, extreme fatigue.