Before Steven's bone marrow transplant, our last fun event was going to Disneyland for Steven's 60th birthday. It seems like ages ago, buying season tickets before our medical bump in the road. We are almost at that point a year later but as you know, no Disneyland for us. Steven wrote and emailed Disney seeing if there was anything they could do and explained our series of unfortunate events. They don't call it the Happiest Place on Earth for no reason. Disney is extending our tickets for another year! Thank you, thank you, thank you! Hopefully we will be able to go back at the end of the year, after Steven's one year anniversary and a few childhood vaccinations under his belt. We appreciate their accommodation and flexibility and are grateful.
Sunday, April 10, 2016
Day +177-Day +186
4/10/16-I'm finishing my thoughts from our last clinic visit ten days later! Sorry about that. Steven's hemoglobin went up to 9.1. No blood again. They ordered a type and screen for our next clinic visit on 4/12...meaning they will see what his blood type is and screen for antibodies. My guess is he is an A, or something in-between. We actually didn't have to go to clinic this past week! So great :) We have been so busy with his recovery that simply freeing up a week gives us so much extra time we didn't have before. It was the first time we got to skip a week. I hope this becomes the trend. There might be talk about pulling Steven's Hickman Catheter soon. Usually it is pulled around 100 days but having a Hickman made getting his weekly unit of blood quick and painless.
Before Steven's bone marrow transplant, our last fun event was going to Disneyland for Steven's 60th birthday. It seems like ages ago, buying season tickets before our medical bump in the road. We are almost at that point a year later but as you know, no Disneyland for us. Steven wrote and emailed Disney seeing if there was anything they could do and explained our series of unfortunate events. They don't call it the Happiest Place on Earth for no reason. Disney is extending our tickets for another year! Thank you, thank you, thank you! Hopefully we will be able to go back at the end of the year, after Steven's one year anniversary and a few childhood vaccinations under his belt. We appreciate their accommodation and flexibility and are grateful.
Before Steven's bone marrow transplant, our last fun event was going to Disneyland for Steven's 60th birthday. It seems like ages ago, buying season tickets before our medical bump in the road. We are almost at that point a year later but as you know, no Disneyland for us. Steven wrote and emailed Disney seeing if there was anything they could do and explained our series of unfortunate events. They don't call it the Happiest Place on Earth for no reason. Disney is extending our tickets for another year! Thank you, thank you, thank you! Hopefully we will be able to go back at the end of the year, after Steven's one year anniversary and a few childhood vaccinations under his belt. We appreciate their accommodation and flexibility and are grateful.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment