We got good news for the first time in awhile. Steven's WBC was in the normal range, 3.6. It hasn't been normal in over a month. His platelets were even higher today although they have steadily been in the normal range. The RBCs are still non-existent but we know that is expected. We are waiting for a unit of blood to be ready. Because we have been and will continue to receive blood every week, they are increasing the Jadenu (Fe chelator). Since he has been taking this medication at night, he hasn't had nausea associated with it. We will see if increasing it makes him more nauseated again.
There was a lot of finger pointing today between blood bank and the nurses. The upshot is the unit of O+ blood just got hung at 1:15pm. It was ordered in clinic at 9:30am... I can't think of anything nice to say so based on my upbringing, I won't say anything at all. We won't be on the road until 3:30ish...
I'm looking forward to having our life back.
So glad to hear the positive & uplifting news. Thank God. Hang in there. In our hearts, thoughts & prayers always.
ReplyDeleteSo good to hear from you Gail! Thank you very much!
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