2/23/16-We found out our contract has indeed expired with the pharmacy at COH. That would have been good to know earlier. We were only granted a 3 month contract since that is the length of time the average patient has a Hickman line. Leave it to Steven to be an overachiever. The RN we spoke to last week called our case manager and we were set up with a pharmacy that mails the Hickman supplies to our home. It looks like we only have to satisfy our deductible and won't pay any extra. I have to be on my "A" game and make sure I don't run out of any supplies since I have to order them now.
Steven's counts are the same as last week so we are waiting for our unit of blood. It takes about a day for the blood to make him feel better making Thursday his best day. Our doctor eluded to possibly not need weekly clinic visits. It all depends on how cooperative the new RBCs will be and when they will present themselves. Each week, the unit seems to last a little longer so we have our fingers crossed for every other week soon.
Since we are always here over the lunch hour, our big question is what is the soup of the day. It's the only thing he can eat in the cafeteria due to the restrictions...no lunch meat unless it is heated to 160 degrees and no salads. You'd be surprised how much that eliminates! I can automatically eliminate any soup with a tomato base...we found out over the weekend that is a trigger for nausea.
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