6/28/16-Looks like I have some explaining to do! It's been 50 days since I last posted. As you might have guessed, we are feeling a little more normal and have been getting out a little more. That doesn't mean we haven't had to continue our medical journey at City of Hope, it just means the normal is starting to outweigh the medical. I rented a cabin for our family on Father's Day weekend only to find out our youngest had strep throat, that whole weekend. He was diagnosed the day we got back and we immediately called COH to see if Steven needed to be on prophylactic Amoxicillin. His counts are so much better that he has to wait it out like us common folk. If he gets a fever or sore throat, he needs to call. We will bring it up today at our visit...
In May, Steven had two good weeks of nausea triggered by graft vs. host disease. He was popping Zofran's like a drug addict, with not much relief. He had to use the big guns, Ativan, but it made him sleepy. They were concerned enough that we were back to once a week clinic visits. The symptoms subsided and we went to a two week clinic visit and then to three weeks. That's where we are today.
We also saw the endocrinologist last month. Since they have been slowly lowering the anti-rejection medications, Steven's glucose has been decreasing to a normal level on it's own. He was given permission to stop taking Glimepiride to regulate glucose levels. He still has to check his blood glucose but only once a day instead of twice a day. We see the endocrinologist again in 3 months.
I'm grateful the fires in Duarte and Azuza are out. That would have made an already arduous trip to COH even...more fun.
Steven's counts look good enough that we don't have to come back for another month! His hemoglobin and hematocrit just squeaked in the normal range...we will take it!
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