7/26/16-I almost forgot how to get to City of Hope...not really but I had to think about it. It's been a month since we were here last. Steven has been pretty tired since the weekend, which we are hoping is because of the heat. He is working 2 days and wants to add another day.
Besides a change of flora and fauna on campus, the new City of Hope Starbucks has opened. This is a big deal because we might have to start a new tradition when we come here...warm chocolate croissants. Unbelievably, our one year anniversary is coming up soon.
Steven's counts are, for the first time, in the normal range (barely). You would think we could book a trip to Europe but no...that pesty childhood immunity is gone. A victim of being pheresed before his transplant to get rid of as much Anti-A antibodies as possible. And interestingly, you would think that he would have the energy of a 23yo German man but no, the transplant by definition, makes you tired even though your counts are finally normal. The fatigue will go away but for now, not much has changed except the wonderful fact that the transplant was successful.
We must be at an interesting crossroad regarding his anti rejection medication. Our oncologist has been decreasing this medication at a snails pace with no change the last 2 months. Since Steven seems to have stabilized, we are decreasing his Tacrolimus 2 days/week. Usually when they decrease his Tacrolimus or Sirolimus, they decrease it every day. I'm not sure why it is such a gradual decrease but this isn't our transplant team's first trip around the block so again we do as we are told and continue to follow all the rules praying for a favorable outcome.
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