Friday, October 9, 2015

Day +2-P.M.

4:00pm-It's a constant changing of the bags-Tacrolimus (immunosuppressive drug), Sodium Chloride, Acyclovir (anti-viral), platelets, red blood cells, etc, etc, etc...
Smells definitely trigger the nausea, but right now it is under control.

Played Wii bowling...until I won.  Then switched to archery...until I won.  Then switched to light sabers and played several games of which I lost every single one.  I highly recommend if you find yourself sequestered for any length of time in one room to bring a Wii.  We've had one for years and hardly played it, in fact we only have one game!  My good friend is offering to bring a few others so we don't look so pathetic playing the same game.  Her daughter said we could borrow them until Steven was well enough to drive and buy his own.

8:00pm-A huge shout out to the Marriott Courtyard in Monrovia.  They have special rates for City of Hope families that include breakfast.  They also offer a shuttle service to and from COH free of charge.  It was a great hotel and I appreciated the convenience and good night sleep.  Maybe next time I'll sleep in the chair....not!

Steven is incredibly tired.  They take his vitals every 4 hours around the clock so he doesn't get a good nights sleep.  His Vitamin D is low and he was given a supplement....well no kidding.  That's what happens when you don't see the sun for any length of time!






4 comments:

  1. Karen....we are really happy to have these updates. You are such a great example of grace under pressure. Hard to believe I can giggle while reading this but somehow you have managed to keep your great sense of humor! Jeff and I are heading to COH to give more platelets this morning...hope they get to Steven but even if they go to someone else, it's good to know we can do something! Keeping you all in our thoughts!

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    1. You guys are so gracious! I'll bet he received one of your units this morning. :) Thank you for donating! I hope while you were here you found a good hiking spot!

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  2. Karen,
    Thanks so much for sharing these updates. Give Steven a big hug and tell him to just go with the tiredness and sleep!
    Lots of love and prayers.
    Mary Ellen and family!

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