We are getting ready to blow this popsicle stand! Not only is the bag of TPN gone but they just weened Steven off his Tacrolimus IV and was switched to pill form. They were talking about letting us leave Saturday but now they are talking about Friday. The whole 4-6 weeks seemed like an eternity on October 3.
The nutritionist talked to us when I got here. It's worse than when you have a newborn. All cutting boards, cooking surfaces, utensils, sponges, etc.. have to be sanitized in bleach water. No honey, no uncooked meats (not a problem), no deli meats that aren't cooked, no bruised or damaged fruits/veggies, no leftovers after 48 hours, he has to eat cooked foods within 2 hours of them being cooked... it goes on and on. I have a little light reading to do tonight. I will also be going grocery shopping for the first time since September. Thanks to everyone who so graciously provided me food so I didn't have to survive on Ensure. I literarily had zero time to cook. I am grateful for all the meals, snacks, and beverages! :) Thank you!
Steven's WBC count is now 2.4. For some reason they didn't calculate his ANC today. Platelets dropped to 77,000 from 89,000 yesterday which they said might happen.
Steven took the bait and went to the group recreational therapy today. Yes, the one I envisioned being run by Nurse Ratchet with perfect order. It's purpose is to keep the patient's minds sharp. They played a card game called Corner Eights and Dominos. Steven's mantra is compete intensely and win, even against other BMT patients. They never saw it coming...
Steven did another mile and earned another foot. He has had some swelling in his feet due to all the IV fluids. That should go away as the IV's are discontinued. He has taken advantage of walking when he isn't tethered to the "second wife".
Great news! Thank God. Whatever you need, please let us know!
ReplyDeleteThank you Gail!
DeleteGreat news. I will text you over the weekend to find when we should plan a trip to Duarte. I'll get my car thoroughly washed tomorrow and be on standby.
ReplyDeleteThis made my morning! Great news for the Swanson's!
ReplyDeleteSo awesome to hear this great news and it will be great to have you guys back in the neighborhood! Put us down for helping in whatever you need also!
ReplyDeleteJill and Kurt