Day +23-Welcome Home Steven!

Steven went home today!!!  He said it was surreal driving home.  But how did we get to this point???

Steven said the doctors would be arriving early.  I arrived at COH with an extra suitcase.  We accumulated a few extra things.  His WBC count dropped to 2.5 but his ANC was 1.6.

His nurse thought we were leaving so I started taking cards off the wall and packing his extra clean clothes.  The endocrinologist came in and said good luck.  The nutritionist came in and said good luck.  The pharmacist went over all our medications and said good luck.  The case manager came in and said good luck.  I went over to the pharmacy at COH to get the supplies to maintain the Hickman catheter.  No doctor.  I took a load to the car.  No doctor.  We watched a Patient Education movie about PICC/Hickman lines and I had another opportunity to demonstrate flushing his Hickman with saline and heparin.

The doctor finally arrived at 11:30am with an entourage.  She does her examination, answers my questions and signs the release forms.  We are almost free!

I pulled the car around, packed up and off we went!  The next phase, home recovery, has begun.

I stopped at our pharmacy to get 15 prescriptions.  Even though I told the Case Manager our pharmacy had to order one of the prescriptions, there was a failure to communicate and one of the GVHD meds were not available.  Luckily, our pharmacy is awesome and she found this medication at another pharmacy in town.  I bought the mother of all pill organizers and we spent 1/2 hour putting pills in little boxes, but who cares, he's home!